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Amyotrophic lateral sclerosis (ALS) is characterized by the degeneration of both upper and lower motor neurons, which ultimately leads to muscle weakness, atrophy, spasticity and contractures.1 ALS typically manifests in the 50–60 years age range, although familial cases may present in late adolescence or early adulthood.2 The time from the first symptom to diagnosis is approximately 10–16 […]

Galia Wilson, Dravet Syndrome UK: Medical research support – Gene therapies, developing drug therapies, and co-morbidity research

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Published Online: Jun 23rd 2022

Dravet Syndrome (DS) is a rare neurological condition, beginning in infancy and lasting a lifetime. touchNEUROLOGY were joined by Galia Wilson, Chair and Trustee of Dravet Syndrome UK (DSUK), a charity created in 2008 by a group of parents who came together looking for support, resources and information relating to the neurological condition. Galia discusses the different types of medical research DSUK support; working closely with world-renowned UK clinicians and research partners, including Great Ormond Street Children’s Hospital Charity, the Dravet Syndrome European Federation, Epilepsy Action and the Epilepsy Society.

Question:

  1. What types of medical research does DSUK support? (0:18)

Resources:

Disclosures: Galia Wilson has nothing to disclose in relation to this video interview.

Support: Interview and filming supported by Touch Medical Media. Interview conducted by Katey Gabrysch.

View the latest Dravet syndrome and epilepsy content here

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